We had our 4th echo at cincinnati childrens hospital today. We have no real new news. There is still very little or no flow through the pulmonary valve. We are praying that this changes once Noah arrives and the pressure in his lungs lower. The diagnosis still remains as ebsteins anomoly with either pulmoary atresia or sever pulmonary stenosis.
To say the least everyone we have seen in the last week has been entirely shocked that we are still pregnant. No one thought that we would be here. God has big plans for Noah!!! I just know it. The OB came out and said no one thought you would be here and the cardiologist just are like hell we have to make a plan now. Which still remains as no set surgery plans until after he is delievered and evaluated. We know that we will deliver him at Good Samaritian Hospital where they will stabalize him start umbilical lines and medicines to keep the ductus arterious open after he is born. This is a pathway that connects blood from the right hand side of the heart back to the aorta to keep blood oxygenated bypassing the lungs. He will then be transprted to Cincinnati Childrens hospital where he will be in the cardiac intensive care unit (CICU). This is where they will do an echo lab work and possiably some other test to see what his official diagnosis will be. We are hoping we make it to full term but every day past 32 weeks is a blessing. Everyday currently goes towards weight gain and lung maturity. I am praying that we can make it far enough along that he will not need to be intubated.
We toured the CICU today along with th. It made it very real to me. It was over whelming to think that we may spend a week or even months there.
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