55 days :)

After spending his entire life in the CICU we will be going to the step down unit today :) I am one excite momma because that is one step closer to home!!!!

Day 53

I got 8+ hours of sleep last night thanks to a wonderful nurse named April :) like I have said before some nurses are gifts from God and some left so much to be desired. Noah and I have been hanging out since daddy had to work all weekend. He gets to hang out with grandma today while Gary & I go to the bengals game. Whodey!!!! The talk is we should be home by the end of the week as long as Noah continues to behave himself. I am so excited about this but I am so scared to get my hopes up. This is the biggest wildest roller coaster tide I have ever been on. But I has been so worth the ride and while I never want to go on it again I would do anything in the world for my sweet precious boy.

50 days

As I was driving to the hospital this morning I was listening to the radio and praying. I was asking God to show me that there truly was an end in sight that this rough rocky road that we've been traveling for the last 50 days with a sign that it will come to an end. As i turned the corner I looked up and saw a rainbow. Along this entire journey I have asked God to keep my noah as he kept his Noah Safe from the storm. As Noah saw a rainbow at the end of his storm I am hoping that the rainbow I saw was a sign that our storm too has ended and brighter days are ahead of us :)

7 weeks old :)

Noah has been extubated for 1 week now!!!! I am having a hard time being excited though because I am so scared something bad will happen. Noah is growing longer but has not gained any weight so we are increasing feeds and calories. He now weighs 3.3 kilos he was 3.2 kilos when he was born. He continues to amaze me with his ability to fight everyday. He has more fight in him then most adults I know :) I am so proud of him and I am completely in love with him. I can't wait till we are home and I can spoil him to no end!!!! He is never going to get put down. No matter what his daddy may have said :) cause he will never put him down either.

I wish someone would have told me how big of a roller coaster this journey would be. I know there is no way to ever prepare someone for this journey but a heads up would be nice. As many highs you experience there are as many lows and some of those lows feel like hell but the highs are heavenly. I am trying to remember I need to rejoice and be excited but it is so hard.

I have to thank my husband for being my rock. For listening to me yell and say mean things to him and about other people. For encouraging me to speak my mind and question the doctors and nurses. I am so proud of him for staying at the hospital and going back to work. I just love him to a million pieces. I don't know what I would do without him :)